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That moment when you forget you have chronic pain

 

Two of my friends are marrying each other in a few weeks, and they are planning a boat trip the day before the wedding. I was talking to one of them about it, asking how to RSVP, and he said he was not sure if I would be able to participate in the day trip due to my back, since the activities involve hiking.

My friend was very considerate and left the options open to what I thought I could handle, but he remembered what I forgot: that I have chronic pain that affects my daily life.

I forgot this because the boat trip sounded fun. I forgot this because I am a socially active person. I forgot this because I am relatively physically active as well. I forgot this because I was feeling strong during that conversation.

Chronic pain and illnesses are odd in that they do not always manifest themselves. I can go a week carrying my guitar on my back and walking to the library, dancing around the house, and lifting babies so they can “fly.” I will have discomfort and pain in this time, will potentially take some ibuprofen to ward off the stronger pain I feel coming, and will certainly require several massages to keep going in this time, but I will still feel relatively strong.

(My definition of feeling strong means being able to walk without having to think about it.)

But then I will have a breakdown. The pain will grow too strong, and an inexplicable weakness will overcome me. Tears will come, my limbs will go weak, and I will lie on a couch or the floor and have to talk to myself again and again and again in order to sit up or move my legs.

“Okay Skye, you’re okay. You’re okay. Move your leg. Move it. MOVE YOUR LEG. Come on, Skye, sit up. Oops, you’re not moving. Why aren’t you moving, Skye? Silly. There you go. Try again. Good, okay, let’s sit up now.”

Sometimes I will be strong in the morning and have a breakdown at night.

Sometimes I will have a totally strong day.

Sometimes I will have a totally bad day.

Breakdowns tend to happen once a week, on weekends, on Sundays. (The devil still cannot stop my worship to the one true God and my Healer.) However, I cannot predict when I will have a good or bad day.

I asked my soon-to-be-wed friend to pray for me to have strength during the entire wedding weekend. I told him I would plan to go on the boat trip but would cancel that day if need be. I absolutely love hiking, so I really want to go.

And who knows? Maybe the Lord will heal me by then. It has been seven years of pain so far. I think it is about time to enter a year of Jubilee and be rid of this pain. Don’t you?

 

 

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Montana. PC: KSB

“My grace is sufficient”: praising God in the face of chronic back pain

“You’re too young to be in pain like this,” they tell me. I shrug and grin sadly. It doesn’t change that I have had chronic back and neck pain for the past six or seven years. I’m only 21.

In high school I went to the chiropractor about once a year for back pain. I thought this was normal, and maybe it was. Doctor Metzger was great, and I appreciated the adjustments he gave when my bones needed it. I also appreciated his honesty, jovial personality, and belief in natural medicine. But in college the pain intensified.

I remember lying in bed in Denver the summer after my freshman year, crying and praying that I could move my body in order to get up. My cousin Jonathan prayed for me from two time zones away, a bad chiropractor stole my money, and I wasn’t well enough to hike in the Rockies. Then sophomore year began.

I composed a mental list of friends who could massage well so I wouldn’t overburden one person when I desperately needed some relief. These student masseuses have been incredibly kind over the years, and I am deeply thankful to these friends. Yet even the most thorough massages would not be effective for long. At first they helped for a couple weeks, then a day or so, then only a few hours. Now they don’t do much at all except to provide very temporary relief and comforting physical touch.

The pain makes college more difficult since I spend all my energy controlling it, which hinders my learning in class and tires me out when it comes time to do homework. Praise the Lord that I have made it this far, with only a few months left until graduation! Although my back and neck issues have caused me to struggle, I am still on track to graduate. I know others whose diseases have set them behind or caused them to drop out of school.

About a year ago, I was in constant pain, and approximately once a week I would break down and not be able to walk, since the pain translated into a weakness in my extremities. I remember collapsing and sobbing in a pile of leaves after church one Sunday, unable to walk the quarter mile from church to the main campus building. Dry leaves served as my tissues, and after the tears had released enough tension in my back, I managed to walk home with multiple rest stops. Typically the pain would build back up over the course of a week until my next breakdown. The pain was usually worst on Sundays, which I understood as a spiritual attack.

This pain hindered not only my own body but also my work in Goma, DRC, this past summer. When I was too weak to teach English one day, I lay crying on a couch in the director’s office and then held my friend Clarice’s hand. My driver took me across Goma to search for medicine so I could prevent more breakdowns and work again.

The pain came to a climax in the first week of my senior year this past fall when I broke down four times in one week. I was afraid I wouldn’t be able to finish college although I’d worked so hard to get to this point and God had shown himself so faithful to bring me there. I began going to doctors and having my friends carry my bags and support me physically as I walked.

I have learned to ask for help when I need it, for I cannot do everything on my own. I am weak on my own. But I am not alone, not with God’s Spirit in me and His people around me.

I’ve been to chiropractors in recent years, but they can’t offer an explanation and don’t do much to help my larger problem. X-rays say my bones are fine. Finally I went to an alternative doctor who confirmed that my problems aren’t structural but rather a conglomeration of internal issues that have built up over years and manifested especially in my shoulder and neck — viruses I’ve had since birth or gotten from a vaccine, strep in my shoulder, and so on. No wonder massages and chiropractic adjustments couldn’t fix me.

This doctor’s remedies have helped a great deal, allowing me to go even weeks without thinking about the pain, although my back would still be uncomfortable at times. What a gift! But a little after Christmas break, the pain started to worsen again. Two weeks ago, I had to stop six times on the four block walk from my house to the place where we had worship practice because I wasn’t strong enough to carry my guitar. I just kept praying, “Yesu, Yesu, Yesu,” taking strength in the name of Jesus.

When I arrived at worship practice, the pianist was playing “Because of Who You Are.” I asked her to keep playing piano, just keep playing, and I laid on the ground and cried. That afternoon I decided to praise God regardless of my pain. I told Him and my team that even if I suffer with this pain for the rest of my life, I will give Him glory and praise.

Since then, I have taken new joy in my suffering. Instead of neglecting God in my trials, I will turn to Him. He has shown himself to be mindful and good and gracious and faithful, and my life would be desolate without the hope Jesus gives. The Bible promises that God will make everything new, and I long for that restoration. Meanwhile, God has given me incredible friends to support me emotionally and help me in my physical need, people who pray for me, and people who can relate to me and guide me along. I am blessed.

I believe Jesus heals, and I’ve witnessed Him do it multiple times in multiple places from Goma to Wheaton. I don’t understand why he heals some people and not others or why some people are healed on the spot and others wait for years. In all this, I do know that His love is constant and faithful and sweet. And I will praise Him for all my days on this broken earth and in heaven where all things are made whole.